By May of 2001 her diagnosis from a cardiac evaluation was; permanent
pacemaker, mild coronary artery disease, hypothyroidism, hypertension,
degenerative joint disease, left bundle branch block. She was now taking
all of the above drugs plus norvasac and hydrochlorothiazide.
In May of 2002 her records show more drugs had been added to her
repertoire. She was also taking lanoxin, docusate sodium and captopril.
By July her symptoms had become so extreme that she was hospitalized and
finally diagnosed with Parkinson's disease. She now had a host of drugs
daily;allopurinol, captopril, sinemet, lanoxin, colace,
hydrochlorothiazide, and Motrin. Comtan was added by a neurologist three
weeks later.
By June of 2003 I moved mom from her home in Hemet to Frederika Manor to
be closer to me. Frederika was a wonderful 24 acre facility with four
levels of care. Independent living was first followed by assisted
living. A specialist for every part of her body was the order of the
day. From 2003 to 2006 she had every known test and with each new
symptom a new drug was ordered. She was dizzy all the time with a blood
pressure of 63/32, alarming the staff. Her legs were swollen and
sometimes she hallucinated at night seeing people crawl on her floor.
She saw neurologists, cardiologists, internal medicine and other
physicians. By December 2004 she was diagnosed with atrial fibrillation,
Parkinson's, gout, pacemaker, congestive heart failure, C spine stenosis,
hypothyroidism,
Gout, and hypertension.
In June of 2006 she began having trouble swallowing and a barium swallow
test indicated "risk for aspiration". The doctor put her on a liquid
diet; she weighed 105 pounds. Assisted living could no longer care for
her and she was transferred to the care center (nursing home). By all
indications my mother didn't have long to live. She cried when I gave
her the news of the impending move. I packed up her studio apartment,
had a ramp built, put a hospital bed in my bedroom and eight days later
brought her home to live with me. It was July 1, 2006. I told her when
she came she would never have to do anything she didn't want to do. That
meant no doctors, hospitals, nursing homes, tests or 911. The next week
hospice was called in by the doctor and life was never the same.
A constant barrage of people; nurses, bathers, housekeepers, doctors,
etc- She was taking 13 different drugs, scheduled eight times daily; DSS,
Synthroid, Allopurinal, Lanoxin, Aldactone, Comtan, Carbidopa-Levodopa,
Coreg, Centravite, Seroquel, Lasix 10 mg, Lasix 20 mg, Exelon, Tylenol,
MSM, Digitek, Ducusate Sodium, Co-enzyme Q10 and Tylenol pm. Because of
the size of the Parkinson's drugs she choked while taking them. A week
after she arrived I took her off all the drugs. My thinking was; "if she
is going to die, it isn't going to be choking on a pill!"
A week and a half later she asked for a piece of chicken. I didn't
hesitate. I got some soft canned chicken, alfredo sauce and instant
mashed potatoes. Her previous lack of appetite vanished as did the bowl
of food. Gradually she regained strength and began using her walker to
walk unassisted to the bathroom. Her liquid diet vanished as did the
swelling in her legs. Her dizziness was gone as were her hallucinations.
Everyone was astonished but hospice workers confessed they had seen this
recovery before when drugs were removed from a patient. It is my belief
that the drugs caused the majority of her symptoms.
Four months later in the Parkinson's specialist's office, he was visibly
astounded. He tested her reactions, took her blood pressure, repeatedly
saying, "She is not taking any Parkinson's medicine?" I told him no. Mom
smiled at him, telling him she was eating anything she liked! He said he
would see her in six months. That was 16 months ago.
Today she weighs 142 pounds, has outgrown all her clothes, and still
eats what she wants. She no longer uses a walker but needs hands on
assistance to ensure she won't fall. There are no signs of congestive
heart failure with swollen legs but her hands and feet are always cold
from lack of circulation. We let hospice go and she has not been to a
doctor nor had any drugs since 2006. I give her purified water, herbal
supplements, organic food, lots of fruit, vegetables, fish, chicken and
a Burger King hamburger and chocolate shake every now and then! Oh, and
she eats all the candy she wants after lunch which is NOT organic!
Chocolate is her favorite! She is happy and content knowing she will die
in a place of peace and quiet when it is her time. Her sense of humor is
amazing and in April she will be 85!
What is the moral of the story? Doctors know about drugs and surgery.
Some know about alternative methods of treatment. Ultimately it is up to
each of us to research, listen to our bodies and use common sense in
order to live more healthy harmonious lives. It also doesn't hurt to
believe in miracles! I don't advocate you do what I did. It was clearly
a choice of the "quality" of life rather than quantity, which is what
she enjoys now. Yes, she still has Parkinson's but the bottom line is;
she is happy and content.